Info On Sickle Cell Charities For Kids

By Jocelyn Davidson


Sickle-cell disease, which might also be called sickle-cell anemia, is the name of a hereditary blood disorder. Both SCD and SCA are characterized by an abnormal, rigid and sickle shape to the red blood cells of the body. The sickling reduces the flexibility of cells and increases the risk for life-threatening issues. A mutant gene that produces normal and abnormal hemoglobin causes this disease. There are numerous sickle cell charities for kids that are meant to raise money in order to help fund medical treatments, as well as research, for those with this hereditary disorder.

People with this condition are known to have a shorter life than those without. The life-expectancy age for men or women with this condition used to be only 50 years old. Now, there have been advances in management, knowledge and technology that have increased the life expectancy. Patients with this have lived well into their 70s and sometimes beyond.

Charities for the kids are meant to raise money to increase medical studies. They also can increase awareness about this disorder, which afflicts so many. This awareness may involve teaching sufferers about the condition and the solutions for management.

Many complications are associated with SCD. People who have this condition are more likely to have osteomyelitis, a decreased immune system, acute papillary necrosis, leg ulcers, opiod intolerance, cholelithiasis, bacterial infections, stroke and more. Most of these problems are preventable and can be healed with care and good lifestyle choices. There are several care options available to those suffering with this disorder, including transfusion therapy, bone marrow transplants and hydroxyurea.

Donations given to charities are used for many benefits and programs. Often they are used to provide the public with information, support medical research, advocacy, and offer professional education. It is essential that research be done on the charities to guarantee the funds are going to the correct source and there is no foul play. Most groups have the same goal of finding a cure for this disorder.

The first known documentation of the condition came from an autopsy report from the mid-1800s. Around the 1900s, this was being seen more frequently in different areas of the world. The condition afflicts people of all ages and is often seen in those with ethnic backgrounds tied to Africa, East India, Middle Eastern areas and Mediterranean countries.

Diagnosis is often done at the time of birth with a blood test, which is part of screening newborns. Kids that test positive will be given second blood tests called hemoglobin electrophoresis just to confirm the diagnosis. Children with this disease are more prone to infection and complications, which is why early diagnostics and treatment is important.

Kids should receive regular care and attention from a doctor, as well as a hematologist. There are certain clinics that deal only with sickle-cell patient care. Health education is a must for these children as they grow up. Charities strive to provide sufferers with helpful resources, while still raising funds to put toward finding a cure.




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